Why is lupus a mystery?

Lupus can be difficult to diagnose because its symptoms vary so widely. People with mild lupus may have just a few symptoms, such as skin rashes or achy joints. In other cases, lupus can harm essential organs, including the kidneys and brain.

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Why is lupus called the cruel mystery?

Rachelle Goins, a former D.C. resident and current ambassador with the Lupus Foundation of America, calls the disease a “cruel mystery” because it is so often misdiagnosed. She experienced her first flare up in the fall of 2015, but wasn't diagnosed until nearly two years later — after seeing a number of doctors.

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Why is lupus interesting?

Lupus symptoms can show up in many different ways and are often mistaken for symptoms of other diseases. This is why it can be hard to diagnose and is often called “the great imitator.” Lupus symptoms can range from mild to life threatening, so early diagnosis and treatment by a rheumatologist are important.

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Was it ever actually lupus?

Hidden grain of truth. The most likely reason for lupus being used as a joke in House is because of the difficulty in delivering a diagnosis of the disease. Initial and chronic lupus symptoms mimic the symptoms of several other diseases, leading to misdiagnoses and making lupus extremely challenging to diagnose.

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Why are so many people getting lupus?

Infections, Sun Exposure, Drugs, and Stress Play a Role in Why Some People Get Lupus. Just because you have a specific genetic predisposition doesn't necessarily mean you'll get lupus.

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Learn Why Lupus is a Cruel Mystery

28 related questions found

Is lupus a big deal?

Lupus flares can be mild to serious, and they do not follow a pattern. However, with treatment, many people with lupus can manage the disease. Anyone can get lupus, but women are more likely to get the disease than men are.

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Is lupus considered rare?

The most common type, systemic lupus erythematosus (SLE), affects about 200,000 US adults. Anyone can develop SLE, but it is more common in Black and Latina women and women of childbearing age (15–44 years). The causes of SLE are unknown but are thought to be related to genetic, environmental, and hormonal factors.

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Are we close to a cure for lupus?

Systemic lupus erythematosus is a very old disease with no cure. Scientists are hoping a novel approach using re-engineered immune cells might finally tame the wolf that gives this disease its name.

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Has anyone ever got rid of lupus?

Systemic lupus erythematosus (lupus) is an autoimmune disease that can cause a wide variety of symptoms that tend to come in flares. Lupus can damage organs and joints and even affect a person's mental health. While there is no cure for this condition, several treatments are available.

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Who is famous with lupus?

10 Celebrities With Lupus
  • Charles Kuralt.
  • Cori Broadus.
  • Flannery O'Connor.
  • J Dilla.
  • Millie, the dog of former First Lady Barbara and U.S. Pres. George H.W. Bush.
  • Nick Cannon.
  • Seal.
  • Selena Gomez.

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Is lupus very bad?

The seriousness of SLE can range from mild to life-threatening. The disease should be treated by a doctor or a team of doctors who specialize in care of SLE patients. People with lupus that get proper medical care, preventive care, and education can significantly improve function and quality of life.

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Why is lupus so serious?

Lupus causes inflammation throughout the body, which can cause problems in organs, including: Kidney damage that can lead to changes in kidney function, including kidney failure. This is called lupus nephritis. Seizures and memory problems due to changes in the brain and central nervous system.

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What is truth about lupus?

Lupus, an autoimmune disorder, is often known as “the great imitator” because it can resemble and mimic many other diseases and conditions. Lupus causes inflammation in the skin, joints, and blood vessels and comes with symptoms that can include nearly anything from a skin rash to neurologic problems.

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What is the enemy of lupus?

The sun is the main source of ultraviolet light and is enemy no. 1 for patients with lupus, because it can trigger the disease or trigger flares at any time in its development.

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What is the most serious lupus?

Systemic lupus erythematosus (SLE) is the most common and most serious type of lupus. SLE affects all parts of the body. Cutaneous lupus erythematosus, which affects only the skin. Drug-induced lupus, a short-term type of lupus caused by certain medicines.

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What is the sister condition to lupus?

Sjogren's syndrome is a relatively common disease, although often under-diagnosed. Sjogren's syndrome can occur alone or in association with other autoimmune diseases, most commonly lupus and rheumatoid arthritis (RA).

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How bad is living with lupus?

Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.

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Is your life shorter with lupus?

With close follow-up and treatment, 80-90% of people with lupus can expect to live a normal life span. It is true that medical science has not yet developed a method for curing lupus, and some people do die from the disease. However, for the majority of people living with the disease today, it will not be fatal.

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Does lupus get worse with age?

With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.

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Why is lupus hard to cure?

Lupus is difficult to diagnose and treat because its symptoms mimic other conditions, it affects the immune system differently in people, and drugs traditionally used to treat it come with serious side effects. Still, doctors and scientists are determined to find solutions.

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Why is it so hard to diagnose lupus?

Lupus can be difficult to diagnose because it has many symptoms that come and go and can mimic symptoms of other disorders or diseases. When speaking to your doctor about your symptoms, be sure to include symptoms that may no longer be present.

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Is lupus becoming more common?

It is most common in younger women, peaking during the childbearing years; however, 20 percent of SLE cases occur in people over age 50. For unknown reasons, in industrialized Western countries SLE has become 10 times more common over the past 50 years.

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How long can you have lupus without knowing?

Lupus is known as "the great imitator" because its symptoms mimic many other illnesses. Lupus symptoms can also be unclear, can come and go, and can change. On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms.

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Where in the world is lupus most common?

In women, the values were 8.82 (2.4 to 25.99) per 100 000 person-years and 0.34 million people annually, while in men, the estimates were 1.53 (0.41 to 4.46) per 100 000 person-years and 0.06 million people annually, respectively. Poland, the USA and Barbados had the highest estimates of SLE incidence.

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What not to do with lupus?

5 Things to Avoid if You Have Lupus
  • (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  • (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  • (3) Garlic. ...
  • (4) Alfalfa Sprouts. ...
  • (5) Echinacea.

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