What not to say to someone with lupus?

Here are 10 things to never say to someone with lupus or any other chronic disease.
  • But you look so good. ...
  • You are too young to have lupus. ...
  • I'm sure things will get better. ...
  • Do you really need to take all these meds? ...
  • Have you tried this diet? ...
  • Have you tried lupus meditation? ...
  • You need to get more exercise.

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How do you comfort someone with lupus?

Communicate
  1. Make sure you are aiming for a healthy exchange of information, which is different from venting emotions.
  2. Talk about major problems caused by lupus, what is most feared about the disease, and your loved one's needs.
  3. Reach out to others. ...
  4. Be open about your needs - ask others for help.

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How does lupus affect relationships?

Studies suggest people with lupus often abstain from sexual activity and avoid intimate relationships for a variety of reasons, including side effects of medication, mood changes, and physical challenges. All of these can affect sexual function, desire and behavior in both women and men with lupus.

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What aggravates lupus?

Common triggers include:
  • Overwork and not enough rest.
  • Being out in the sun or having close exposure to fluorescent or halogen light.
  • Infection.
  • Injury.
  • Stopping your lupus medicines.
  • Other types of medicines.

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What causes lupus to worsen?

Emotional stress -- such as a divorce, death in the family, or other life complications -- and anything that causes physical stress to the body -- such as surgery, physical harm, pregnancy, or giving birth -- are examples of triggers that can set off lupus or bring about a lupus flare.

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3 Things Not To Say To Someone WIth Lupus

41 related questions found

What is the sister disease to lupus?

Systemic lupus erythematosus (SLE) and Sjögren's syndrome (SS) may coexist, and they are chronic complex disorders, with an autoimmune background, multifactorial etiology, multiple circulating autoantibodies, and variable prognosis.

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What are daily struggles with lupus?

Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.

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What is the enemy of lupus?

The sun is the main source of ultraviolet light and is enemy no. 1 for patients with lupus, because it can trigger the disease or trigger flares at any time in its development.

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What organ does lupus affect first?

Kidneys About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus.

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What not to do with lupus?

5 Things to Avoid if You Have Lupus
  • (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  • (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  • (3) Garlic. ...
  • (4) Alfalfa Sprouts. ...
  • (5) Echinacea.

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Does lupus affect your attitude?

People with lupus may experience unpredictable changes in moods and personality traits. This can include feelings of anger and irritability. These may be related to the disease process or, in some cases, the use of corticosteroid medications.

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Is living with lupus hard?

Living with lupus can be hard, but a positive outlook is important. You can do several things to help you live with lupus. A good place to start managing your lupus is to work with your doctor and take your medications as directed. At times, you may feel sadness and anger.

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How does lupus affect your thinking?

People with lupus can have cognitive symptoms, like having a hard time thinking clearly or remembering things. This is also called “brain fog” or “lupus fog,” and it often comes and goes over time. In some people, lupus fog can be present for many years.

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How long do people with lupus love?

For people with lupus, some treatments can increase the risk of developing potentially fatal infections. However, the majority of people with lupus can expect a normal or near-normal life expectancy.

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Should you rest with lupus?

Get Enough Rest to Prevent Fatigue

If you have lupus you may need even more sleep. “It's important to develop good sleeping habits,” says Jolly. “It can really make the difference in getting a good night's sleep.” Take time to relax before bedtime.

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Why are lupus patients so tired?

Inflammation: Any time your body is experiencing excess inflammation, such as during a lupus flare, you will feel more tired. Anemia: Anemia occurs when your red blood cell count gets low. This means that the amount of oxygen going to your organs will decrease, which can increase your level of fatigue.

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What hurts the most with lupus?

Muscle and joint pain.

This affects most people with lupus. Common areas for muscle pain and swelling include the neck, thighs, shoulders, and upper arms.

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What are the four stages of lupus?

Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple organ systems. There are four main types of lupus: neonatal, discoid, drug-induced, and systemic lupus erythematosus (SLE), the type that affects the majority of patients.

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What is the most serious form of lupus?

Systemic lupus erythematosus (SLE) is the most common and most serious type of lupus. SLE affects all parts of the body.

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What does lupus do to your face?

Thick, scaly patch of skin (discoid lupus)

People who have discoid lupus develop these patches. Most patches appear on the face, scalp, or ears, but patches can develop elsewhere on the skin. Without prompt treatment, these patches tend to stay on the skin for a long time — sometimes for years.

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Is lupus worse than rheumatoid?

Neither RA nor lupus is "worse" than the other. They are different conditions and require treatment accordingly. Lupus and RA patients can have a mild or severe form of either disease.

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What lifestyle changes for lupus?

Build your diet around lots of fruits and vegetables as well as whole grains. For protein, stick to fish and poultry instead of red meat. Also make sure you get plenty of calcium for bone and joint health. If fluid retention or high blood pressure is a problem for you, reduce your salt intake.

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What is a fun fact about lupus?

Lupus usually develops between ages 15 and 44 and it lasts a lifetime. Lupus can strike anyone, but 90 percent of the people living with lupus are females. Men, children and teenagers develop lupus too.

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What does lupus turn into?

Lupus may lead to blood problems, including a reduced number of healthy red blood cells (anemia) and an increased risk of bleeding or blood clotting. It can also cause inflammation of the blood vessels.

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