What does a CFS crash feel like?

This is known as post-exertional malaise (PEM). People with ME/CFS often describe this experience as a “crash,” “relapse,” or “collapse.” During PEM, any ME/CFS symptoms may get worse or first appear, including difficulty thinking, problems sleeping, sore throat, headaches, feeling dizzy, or severe tiredness.

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How long does a CFS crash last?

The onset of PEM is often delayed in presentation, occurring 12- 72 hours after the trigger(s), and can last hours to weeks and even months at a time depending on the severity of the energy insult.

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What to do when a CFS crash happens?

Resting and Mind/Body Practices

Resting, simply resting was easily the most commonly reported 'fix' for a crash. Sleeping was next and then reducing stimuli but these answers really all went together; i.e. reducing stimuli is part of the package when you get away and simply rest and/or sleep.

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How debilitating is chronic fatigue syndrome?

People with ME/CFS have severe fatigue and sleep problems. ME/CFS may get worse after people with the illness try to do as much as they want or need to do. This symptom is called post-exertional malaise (PEM). Other symptoms can include problems with thinking and concentrating, pain, and dizziness.

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What to do during a CFS flare?

It's usually helpful to use multiple strategies to manage it. A typical stress management plan might include a daily relaxation procedure, daily walks, taking regular rest breaks daily, having pleasurable activities every day and living by a schedule.

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Crashing And Setbacks From M.E./CFS: What Should I Do?

30 related questions found

How long do chronic fatigue flare ups last?

Overview. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complicated disorder. It causes extreme fatigue that lasts for at least six months. Symptoms worsen with physical or mental activity but don't fully improve with rest.

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Can you be hospitalized for CFS?

The health status of a severe or very severe ME/CFS patient can change over time, sometimes rapidly and potentially requiring hospitalization.

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What are the pain points of CFS?

The most common types of pain in ME/CFS are: Muscle pain and aches. Joint pain without swelling or redness. Headaches, either new or worsening.

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How tired are you with chronic fatigue syndrome?

Most people with ME/CFS describe their fatigue as overwhelming and a different type of tiredness from what they've experienced before. Exercising usually makes the symptoms worse. Sometimes the effect is delayed and you'll feel very tired a few hours after you've exercised, or even the next day.

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What is the root cause of chronic fatigue syndrome?

It is possible that ME/CFS is caused by a change in the person's immune system and the way it responds to infection or stress. ME/CFS shares some features of autoimmune illnesses (diseases in which the immune system attacks healthy tissues in own body, like in rheumatoid arthritis).

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Should I rest with CFS?

Rest is the single most important factor in allowing CFS sufferers (CFSs) to get better. An invariable feature of the history is that exercise (either mental, physical or emotional) makes the symptoms worse. Indeed, this distinguishes CFS from depression - exercise tends to improve people who are simply depressed.

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How do I regain energy with CFS?

A diet rich in polyunsaturated and monounsaturated fats, avoiding saturated fats and refined carbohydrates—like the Mediterranean Diet—is reported by many people with ME/CFS to be helpful. Eat several small meals throughout the day. For example, three meals and three snacks might help keep energy levels up.

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Can you rest too much with CFS?

It is not uncommon for CFS patients to sleep for periods of 12 hours or longer. But even if they sleep for this long, they still don't feel refreshed. Some have headaches when they wake up. For many people with CFS, it can help if they sleep in and nap during the day.

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What percentage of people recover from CFS?

Around 40% of CFS patients experience recovery over several years regardless of treatment.

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How do you stop a CFS flare up?

There's no specific medicine for treating ME/CFS, but medicine can be used to relieve some of the symptoms. Over-the-counter painkillers can help ease headaches, as well as muscle and joint pain. A GP can prescribe stronger painkillers, although they should only be used on a short-term basis.

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What is worse fibromyalgia or chronic fatigue syndrome?

They're both considered central sensitivity syndromes, with both involving fatigue, pain, and cognitive dysfunction. Chronic fatigue syndrome (also called myalgic encephalomyelitis or ME/CFS) is more often tied to immune-system abnormalities than fibromyalgia. And fibromyalgia is generally more painful than ME/CFS.

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How many hours a day do people with CFS sleep?

CFS sufferers should try to have at least 8 to 9 hours of sleep every day. If a late night is planned, a nap during the day is good preparation. How can you improve your sleep? Most people with CFS find that their sleep improves when the other CFS symptoms start to improve.

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Is chronic fatigue syndrome a burnout?

The definition of burnout is for example very similar to that of chronic fatigue syndrome (CFS) with regard to fatigue and restraints on daily functioning. Burnout, however, can be distinguished from CFS by the attribution of fatigue to work instead of somatic factors (Hoogduin et al., 2001; Huibers et al., 2003).

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Is me CFS a disability?

Some people with chronic fatigue syndrome (CFS) are able to work and have a job that is flexible and meets their needs. However, if you have CFS and are unable to work, you can apply for disability benefits through the Social Security Administration (SSA).

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What are the three stages of CFS?

As in other chronic diseases, ME/CFS evolves through different stages, from asymptomatic predisposition, progressing to a prodromal stage, and then to symptomatic disease.

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Is CFS a mental health condition?

The latest understanding however is that CFS is in fact a neurological condition which can in turn cause mental health conditions such as depression and anxiety to develop.

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Can CFS turn into fibromyalgia?

Chronic Fatigue Syndrome. Chronic fatigue syndrome (CFS) is another complex disorder that is very similar to fibromyalgia. Although they are two separate conditions, the latest research suggests that there may be a connection between fibromyalgia and CFS.

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What are the symptoms of CFS eyes?

People with CFS consistently report having trouble focusing on images, eye strain, vision-related headaches, slow eye movements and tracking moving objects, in addition to hypersensitivity to light and dry eye.

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What is the new name for chronic fatigue syndrome?

Chronic fatigue syndrome (CFS) is a serious, long-term illness that affects many body systems. Another name for it is myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). CFS can often make you unable to do your usual activities. Sometimes you may not even be able to get out of bed.

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How do you explain chronic fatigue to a family?

You were too sick to get much done, and definitely too sick to work or play with your children. You had too much fun and a few too many drinks one night, then couldn't get off the couch the entire next day. You felt so weak and tired that you had to call in sick with some made-up illness.

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