What is it like living with Sjogren's?

Although the hallmark symptoms are dry eyes, dry mouth, fatigue and joint pain, Sjögren's is a systemic disease and affects the entire body. Fatigue is often described as one of the most debilitating symptoms of Sjögren's.

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Can you live a normal life with Sjogren's disease?

Life expectancy in primary Sjogren's syndrome is comparable to that of the general population, but it can take up to seven years to correctly diagnose Sjogren's. Although life expectancy is not typically affected, patients' quality of life is, and considerably.

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How does Sjogren's syndrome affect your life?

The main symptoms are dry eyes and mouth, but other parts of the body may be affected as well, with many people reporting fatigue and joint and muscle pain. In addition, the disease can damage the lungs, kidneys, and nervous system.

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What is the best lifestyle for Sjogren's syndrome?

Avoid sugar and sugary beverages, because they can promote tooth decay, as well as coffee, alcohol, and nicotine, which can irritate the mouth. Use lip balm or ointments to soothe dry or cracked lips. A humidifier can relieve dryness in the winter or at night.

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How debilitating is Sjogren's?

Over time, the immune system for people with Sjogren's syndrome can damage other parts of your body, including joints, nerves, skin, and organs such as kidneys, liver, and lungs. These long-term consequences can be quite debilitating.

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Living With Sjogren's Syndrome? #what is sjogren's #autoimmune

44 related questions found

What are the worst symptoms of Sjogren's?

In more serious cases of Sjögren's syndrome, the immune system can attack other parts of the body, causing symptoms and conditions such as:
  • dry skin.
  • tiredness and fatigue – which are common and can lead to total exhaustion.
  • muscle pain.
  • joint pain, stiffness and swelling.
  • vasculitis (inflammation of blood vessels)

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What aggravates Sjogren's?

Avoiding foods that tend to exacerbate symptoms including alcohol, caffeine, acidic foods, and spicy foods.

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Does stress make Sjogrens worse?

Falk: What kinds of factors can make Sjogren's worse? What is the effect, for example, of stress? Jonas: Well, like all autoimmune diseases, patients who feel stressed or are under unusual stress will often have exacerbation of their symptoms. Learning to manage that stress in your life is very important.

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Can you drink alcohol with Sjogren's?

Avoid alcohol (including alcohol-based oral elixirs) because this can aggravate symptoms and mouth dryness. Tobacco. You should not smoke, and you should avoid areas where people are smoking, as this can aggravate dryness symptoms.

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How do you fight fatigue with Sjogren's?

Five Ideas for Combating Fatigue When you have Sjogren's Syndrome
  1. Stay hydrated. Dehydration can contribute to mental and physical fatigue. ...
  2. Eat well. ...
  3. Get physically active. ...
  4. Get mentally active. ...
  5. Get adequate amounts of sleep.

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What are the stages of Sjogren's syndrome?

We divided SS patients into three stages: stage I is glandular SS, stage II is extraglandular SS, and stage III is extraglandular SS with lymphoid malignancy.

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What does Sjogren's do to the brain?

Sjögren's syndrome can cause nerve damage which regulates the coordination of heartbeat, respiration, and gastric motility. This is called an “autonomic neuropathy.” Examples of symptoms include lightheadedness when standing, decreased or increased sweating, and feeling full despite eating small meals.

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What are long term complications of Sjogren's?

If Sjögren's syndrome isn't treated appropriately, significant, long-term complications could result that affect your eyes, mouth, lungs, kidneys, liver or lymph nodes — complications including blindness, significant dental destruction and non-Hodgkin lymphoma.

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How do you stop the progression of Sjogren's?

Lifestyle and home remedies
  1. Don't smoke. Smoking can irritate and dry out your mouth.
  2. Increase your fluid intake. Take sips of fluids, particularly water, throughout the day. ...
  3. Stimulate saliva flow. Sugarless gum or citrus-flavored hard candies can boost saliva flow. ...
  4. Try artificial saliva. ...
  5. Use nasal saline spray.

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What famous people have Sjogren's syndrome?

Venus Williams Has Sjögren's Syndrome

After winning her first round in the U.S. Open tennis tournament at age 31 in the summer of 2011, this tennis legend withdrew from play and announced she had Sjögren's syndrome, an autoimmune disease that causes extensive dryness, fatigue, and chronic pain.

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Does sjogrens cause weight gain?

Sjögren's syndrome doesn't cause weight gain. However, medications (like steroids) used to treat symptoms may cause weight gain. Also, there are conditions like hypothyroidism that may be linked to Sjögren's syndrome that can result in unintended weight gain.

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Can I drink coffee with Sjogren's?

Caffeinated drinks and alcohol can dry your mouth, and you should avoid them. You should also avoid spices and acidic foods such as citrus, as these can irritate a dry, sore mouth.

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Can Sjogren's turn into lupus?

What Is The Connection Between Lupus and Sjogren's Syndrome? Sjogren's syndrome is a rare autoimmune condition that often accompanies other autoimmune conditions. Some of these include lupus or rheumatoid arthritis. It is estimated that up to 15 to 18 percent of people living with lupus also have Sjogren's syndrome.

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Does Sjogren's affect your emotions?

Patients with pSS have an increased risk of newly diagnosed depressive and/or anxiety disorders and sleep disorders that may impair their quality of life [4,13,14]. Moreover, unpredictable course of the disease and increased risk of developing lymphoma may additionally affect psychological status of pSS patients [15].

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Can you still cry with Sjogren's?

"Patients with Sjögren's syndrome experience chronic dryness of the eyes and mouth as well as other parts of the body, and thus have a hampered ability to cry. This may affect their ability to express their emotions and they often have to rely on words and facial expressions instead of tears as a result" said Ms.

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Does hot weather make Sjogrens worse?

Trigger: High and low temperatures

About half the time, it occurs alongside other autoimmune conditions such as lupus, rheumatoid arthritis or scleroderma. Barsky points to a recent study showing that both extreme heat and cold often affect Sjögren's.

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What is the average age of Sjogren's syndrome?

Age: Most people who are diagnosed with Sjögren's syndrome are 40 or older, but it can affect younger individuals, including children. Gender: Women are as much as 10 times more likely to develop Sjögren's syndrome than men. This imbalance may be related to the effect of sex hormones on a woman's immune system.

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What are three signs of Sjogren's syndrome?

The symptoms of Sjögren's syndrome include:
  • dry eyes.
  • a dry mouth.
  • dry skin.
  • tiredness.
  • vaginal dryness.
  • muscle or joint pain.
  • swelling between the jaw and ears (swollen salivary glands)
  • rashes (especially after being in the sun)

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Are eggs bad for Sjogren's?

Allergens : Allergenic foods such as dairy, peanuts, and eggs should be avoided by those with Sjogren's syndrome, even if they do not have allergies to these foods.

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