What happens when you find out you have lupus?

Talk to your doctor if you have lupus symptoms. Lupus is a chronic disease with no cure. This means that you can manage it with treatment, but it will not go away. Treatment can help improve your symptoms, prevent flares, and prevent other health problems often caused by lupus.

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What happens when you first get diagnosed with lupus?

Lupus facial rash

Signs and symptoms may come on suddenly or develop slowly, may be mild or severe, and may be temporary or permanent. Most people with lupus have mild disease characterized by episodes — called flares — when signs and symptoms get worse for a while, then improve or even disappear completely for a time.

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What happens if you test positive for lupus?

A positive test for the presence of these antibodies — produced by your immune system — indicates a stimulated immune system. While most people with lupus have a positive ANA test, most people with a positive ANA do not have lupus. If you test positive for ANA , your doctor may advise more-specific antibody testing.

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How serious is lupus?

The seriousness of SLE can range from mild to life-threatening. The disease should be treated by a doctor or a team of doctors who specialize in care of SLE patients. People with lupus that get proper medical care, preventive care, and education can significantly improve function and quality of life.

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How do you cope with lupus diagnosis?

What can I do to control my lupus symptoms?
  1. Learn how to tell that a flare is coming.
  2. See your doctors regularly.
  3. Limit the time you spend in the sun and in fluorescent and halogen light.
  4. Get enough sleep and rest.
  5. Build a support system made up of people you trust and can go to for help.

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Understanding Lupus: Activist Spreads Awareness, Breaks Stigmas

31 related questions found

What is the next step after being diagnosed with lupus?

Once you have a diagnosis, or even if you are still being evaluated, it's important to find a healthcare provider who cares for people with lupus—usually a rheumatologist. Since lupus is relatively uncommon, many practitioners have seen only a few people—or may never have seen—someone with lupus.

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How does a person with lupus feel?

You may experience pain and stiffness, with or without swelling. This affects most people with lupus. Common areas for muscle pain and swelling include the neck, thighs, shoulders, and upper arms. Fever.

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What organ does lupus affect first?

Kidneys About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus.

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Is lupus a big deal?

Lupus is a lifelong disease that can affect many parts of your life. But, many women with lupus live long, healthy lives. You can take steps to control your symptoms, prevent lupus flares, and cope with the challenges of lupus.

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What are the four stages of lupus?

Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple organ systems. There are four main types of lupus: neonatal, discoid, drug-induced, and systemic lupus erythematosus (SLE), the type that affects the majority of patients.

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What not to do if you have lupus?

5 Things to Avoid if You Have Lupus
  1. (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  2. (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  3. (3) Garlic. ...
  4. (4) Alfalfa Sprouts. ...
  5. (5) Echinacea.

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Will I be disabled with lupus?

According to the Social Security Administration (SSA), lupus does qualify as a disability if all conditions are met. Your lupus must affect two or more organs or body systems with severe symptoms in at least one.

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Should you work if you have lupus?

Many people with lupus are able to continue to work, although they may need to make changes in their work environment. Flexible work hours, job-sharing, and telecommuting may help you to keep working. It may be helpful to begin to make such arrangements soon after you have been diagnosed with lupus.

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What triggers lupus?

Exposure to certain factors in the environment – such as viral infections, sunlight, certain medications, and smoking – may trigger lupus. Immune and Inflammatory Influences.

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How fast does lupus progress?

Lupus nephritis tends to develop within 5 years of the appearance of initial lupus symptoms. The condition affects about 40% of people who have SLE and can lead to end-stage kidney disease (ESKD) in 22% of patients over a period of 15 years.

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When does lupus become an emergency?

Severe abdominal pain. Chest pain or shortness of breath. Seizures. New onset of a fever or if your fever is much higher than usual.

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What is the average lifespan for lupus?

With close follow-up and treatment, 80-90% of people with lupus can expect to live a normal life span. It is true that medical science has not yet developed a method for curing lupus, and some people do die from the disease. However, for the majority of people living with the disease today, it will not be fatal.

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How long can you have lupus without knowing?

Lupus symptoms can also be unclear, can come and go, and can change. On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms.

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Can you drink alcohol with lupus?

Most people with lupus who are old enough to drink alcohol can do so in moderation. Be aware, however, that alcohol can change the way the body uses or metabolizes certain medications, rushing them into the bloodstream. This can intensify both the good and not-so-good effects of medications.

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Does lupus make you gain weight?

For some people, living with and managing lupus can cause weight gain. Weight gain may also lead to worsening lupus symptoms and complications associated with obesity. Some potential causes of weight gain that relate to lupus may include: being a side effect of medications such as corticosteroids.

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What are the symptoms of lupus in a woman?

Common symptoms include fatigue, hair loss, sun sensitivity, painful and swollen joints, unexplained fever, skin rashes, and kidney problems. There is no one test for SLE. Usually, your doctor will ask you about your family and personal medical history and your symptoms. Your doctor will also do some laboratory tests.

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Is lupus inherited from mother or father?

Lupus is not a hereditary condition.

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Is it lupus or MS?

Lupus often causes skin rashes, arthritis, mouth sores, sun sensitivity, hair loss, or kidney problems, but these symptoms don't show up in MS. Even when lupus affects your nervous system, its most common symptoms are migraine, personality changes, seizures, or stroke, but these aren't typical for MS.

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What does undiagnosed lupus look like?

A tell-tale sign of lupus is a butterfly-shaped rash across the cheeks and bridge of the nose. Other common skin problems include sensitivity to the sun with flaky, red spots or a scaly, purple rash on various parts of the body, including the face, neck, and arms. Some people also develop mouth sores.

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What does lupus do to eyes?

The effects lupus may have in and around the eyes include: changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball, blood vessel changes in the retina, and damage to nerves controlling eye movement and affecting vision.

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