What are daily struggles with lupus?

Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.

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What are the difficulties of lupus?

If you have lupus, you might experience joint pain, skin sensitivities and rashes, and issues with internal organs (brain, lungs, kidneys and heart). Many of your symptoms might come and go in waves — often called flare-ups. At times, symptoms of lupus might be mild or not noticeable (meaning they're in remission).

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How does lupus affect quality of life?

According to the Lupus Research Alliance, about half of all people with lupus experience cognitive difficulties with thought processes. Around 1 in 5 people experience headaches, memory loss, mood swings, and stroke. Blood clots might also develop. These might also lead to dangerous complications, such as stroke.

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What are the worst things about lupus?

Health Problems Include:
  • Heart disease. Lupus raises the risk of the most common type of heart disease, called coronary artery disease (CAD). ...
  • Osteoporosis. Medicines that treat lupus may cause bone loss. ...
  • Kidney disease. More than half of all people with lupus have kidney problems, called lupus nephritis.

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How does a person with lupus feel?

Almost everyone with lupus has joint pain and swelling, but depending on what part of your body the lupus is attacking, you could have other symptoms too. If it's your skin, you might have a rash on your face and body. If lupus attacks your digestive tract, you might feel sick to your stomach.

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Understanding Lupus: Activist Spreads Awareness, Breaks Stigmas

43 related questions found

What are the signs that lupus is getting worse?

How can I tell if a lupus flare is coming?
  • Feeling more tired.
  • Pain.
  • Rash.
  • Fever.
  • Stomach ache.
  • Severe headache.
  • Dizziness.

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Is living with lupus hard?

Living with lupus can be hard, but a positive outlook is important. You can do several things to help you live with lupus. A good place to start managing your lupus is to work with your doctor and take your medications as directed. At times, you may feel sadness and anger.

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What jobs to avoid with lupus?

People with lupus should avoid jobs that involve strenuous physical labor such as construction, factory work, and heavy lifting. Additionally, jobs that involve working long hours, exposure to extreme temperatures, or working with dangerous chemicals should be avoided.

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Why is lupus so hard?

Lupus can be hard to diagnose because it has many symptoms that are often mistaken for symptoms of other diseases. Many people have lupus for a while before they find out they have it. If you have symptoms of lupus, tell your doctor right away. No single test can tell if a person has lupus.

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What should you not do if you have lupus?

5 Things to Avoid if You Have Lupus
  1. (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  2. (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  3. (3) Garlic. ...
  4. (4) Alfalfa Sprouts. ...
  5. (5) Echinacea.

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What lifestyle changes for lupus?

Build your diet around lots of fruits and vegetables as well as whole grains. For protein, stick to fish and poultry instead of red meat. Also make sure you get plenty of calcium for bone and joint health. If fluid retention or high blood pressure is a problem for you, reduce your salt intake.

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Does lupus affect your personality?

People with lupus may experience unpredictable changes in moods and personality traits. This can include feelings of anger and irritability. These may be related to the disease process or, in some cases, the use of corticosteroid medications.

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What organ does lupus affect first?

Kidneys About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus.

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Is lupus a disability in Australia?

Is Autoimmune disease a disability that qualifies for financial help in Australia? Autoimmune disease is a disability that qualifies for financial help in Australia. Help is available through the National Disability Insurance Scheme (NDIS) which is administered by Centrelink.

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What are 4 complications of lupus?

There are several complications related to systemic lupus erythematosus (SLE) and its treatments you should be aware of:
  • Skin scarring.
  • Joint deformities.
  • Kidney failure.
  • Stroke.
  • Heart attack.
  • Pregnancy complications.
  • Hip destruction (also called avascular necrosis)
  • Cataracts.

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Is lupus a big deal?

Lupus is a lifelong disease that can affect many parts of your life. But, many women with lupus live long, healthy lives. You can take steps to control your symptoms, prevent lupus flares, and cope with the challenges of lupus.

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Why is lupus so exhausting?

Inflammation: Any time your body is experiencing excess inflammation, such as during a lupus flare, you will feel more tired. Anemia: Anemia occurs when your red blood cell count gets low. This means that the amount of oxygen going to your organs will decrease, which can increase your level of fatigue.

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Does lupus make it hard to work?

Many people with lupus are able to continue to work, although they may need to make changes in their work environment. Flexible work hours, job-sharing, and telecommuting may help you to keep working. It may be helpful to begin to make such arrangements soon after you have been diagnosed with lupus.

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Should you rest with lupus?

Get Enough Rest to Prevent Fatigue

If you have lupus you may need even more sleep. “It's important to develop good sleeping habits,” says Jolly. “It can really make the difference in getting a good night's sleep.” Take time to relax before bedtime.

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Does stress make lupus worse?

Living with lupus can be stressful. And stress can trigger your lupus symptoms or make them worse. But you can take steps to manage stress and protect your health.

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Do you get sick easier with lupus?

People with lupus are more likely to experience infection and infection-related complications. This is because their immune system is weakened by both the disease and the medication used to treat it. The most common infections for people with lupus include those of the respiratory tract, skin and urinary system.

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How do I know if my lupus is active?

Common symptoms that indicate a flare are: Ongoing fever not due to an infection. Painful, swollen joints. An increase in fatigue.

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How debilitating is lupus?

When lupus is advanced or severe, it can disable the individual. The symptoms include malaise, low mental and physical capacity, fever, severe joint aches that limit mobility, severe and frequent exhaustion, and involuntary weight loss.

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How did I get lupus?

It's likely that lupus results from a combination of your genetics and your environment. It appears that people with an inherited predisposition for lupus may develop the disease when they come into contact with something in the environment that can trigger lupus. The cause of lupus in most cases, however, is unknown.

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