How do you explain fibromyalgia pain to others?

Probably the simplest, clearest explanation is: Fibromyalgia is like a migraine all over your body.

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How do you explain fibromyalgia to someone who doesn t understand it?

Fibromyalgia is a chronic (long-lasting) disorder that causes pain and tenderness throughout the body, as well as fatigue and trouble sleeping. Scientists do not fully understand what causes it, but people with the disorder have a heightened sensitivity to pain.

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How do people describe fibromyalgia pain?

Nature of the pain: Words commonly used to describe fibromyalgia pain include aching, dull, numbing, burning, tingling, pins-and-needles, throbbing, pounding, shooting, sharp, stabbing, blinding, knife-like, needle-like, and others.

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How do you explain fibromyalgia simple?

Overview. Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals.

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What does a bad fibro flare feel like?

A fibromyalgia attack is also known as a flare-up. An attack can come on suddenly and cause mild to severe pain. These attacks may cause aching, burning, throbbing, or stabbing. “I see fibromyalgia attacks mostly in the female population, ages 30-65.

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How to Explain What Fibromyalgia Feels Like

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Do you feel unwell with fibromyalgia?

If fibromyalgia has caused you to experience pain and stiffness in your neck and shoulders, you may also have frequent headaches. These can vary from being mild headaches to severe migraines, and could also involve other symptoms, such as nausea (feeling sick).

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What is the number one symptom of fibromyalgia?

Fibromyalgia has many symptoms that tend to vary from person to person. The main symptom is widespread pain. There may be periods when your symptoms get better or worse, depending on factors such as: your stress levels.

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What painkiller is best for fibromyalgia?

The drugs amitriptyline, duloxetine, milnacipran and pregabalin can relieve fibromyalgia pain in some people. They may cause side effects such as a dry mouth or nausea. Normal painkillers like ibuprofen or acetaminophen (paracetamol) aren't recommended for the treatment of fibromyalgia.

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How severe can fibromyalgia get?

The pain ranges from mild to severe, with "flare ups" and times of improvement. The discomfort from fibromyalgia may feel like burning, soreness, stiffness, aching, or gnawing pain, often times with sore spots in certain parts of your muscles. The pain may feel like arthritis. But it doesn't damage muscles or bones.

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What is the pain scale for fibromyalgia?

Symptom Severity Scale

The symptom severity (SS) scale evaluates four symptoms considered defining in a fibromyalgia diagnosis. 4 Each symptom is scored on a scale of 0 to 3, with 0 meaning no symptoms; 1 meaning mild symptoms; 2 meaning moderate symptoms; and 3 meaning serious symptoms.

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Can fibromyalgia make you bedridden?

Symptoms include extreme exhaustion, muscle pain, headaches and poor concentration. Many sufferers can be bedridden for years. Fibromyalgia is a chronic condition where you suffer widespread pain and fatigue.

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What doctors don't tell you about fibromyalgia?

“They don't tell you about the emotions you will have to deal with every single day, the grief for the person you used to be, the guilt you'll feel every time you let someone down and cancel plans, the fear of the future and the feeling of being a burden to your family.

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Should I tell people I have fibromyalgia?

However, if asked sooner, I would tell them sooner. As in all other aspects of life, I find that honesty is the best policy. Besides, it's inevitable that your limited capabilities and sporadic attendance will soon become apparent.

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How do you prove you have fibromyalgia?

Fibromyalgia is diagnosed based primarily on having pain all over the body, along with other symptoms. Currently, there are no specific laboratory or imaging tests for fibromyalgia.

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What is the number one treatment for fibromyalgia?

The most helpful treatment approach for fibromyalgia is a combination of self-care, physical activity and cognitive-behavioral therapy. But medication may also be needed.

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What is the newest treatment for fibromyalgia?

Although large-scale studies are still needed to confirm their effectiveness, the newest FDA-approved treatments for fibromyalgia include Quell and milnacipran. Quell is an over-the-counter transcutaneous electrical nerve stimulator intended to be used for pain relief.

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How long do fibromyalgia flares last?

Some flares only last for a day or two but others may continue for several weeks or even months. The best way to prevent fibromyalgia flares is to identify what causes them and, when possible, try to avoid the circumstances that trigger them.

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What is the root cause of fibromyalgia?

Fibromyalgia is often triggered by an event that causes physical stress or emotional (psychological) stress. Possible triggers include: a serious injury, such as after a car accident. an infection, such as Epstein-Barr virus or Lyme disease.

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What are the four stages of fibromyalgia?

Results: There were four parent stages of FM identified and labeled: 1) regional FM with classic symptoms; 2) generalized FM with increasing widespread pain and some additional symptoms; 3) FM with advanced and associated conditions, increasing widespread pain, increased sleep disturbances, and chemical sensitivity; ...

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How do I explain fibromyalgia to my husband?

A simple way to explain the physiology of fibromyalgia is: My brain and nerves are hypersensitive and over-react to pain and all sorts of other things, and my hormones and immune system are messed up, too.

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What is the difference between MS and fibromyalgia?

The symptoms can be similar, but people with fibromyalgia are more likely to experience depression, irritable bowel syndrome, and widespread, persistent pain. Symptoms more common with MS include weakness, vision problems, muscle spasms, and bowel or bladder issues.

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What is the emotional side of fibromyalgia?

Emotional and affective impact of fibromyalgia

FMS patients display a high rate of anxiety (20%–80%)87 and depressive disorders (13%–63.8%).

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What is the longest fibro flare?

A flare can be over in 1 to 2 days or last as long as a few weeks. Here are some of the most common symptoms of fibromyalgia: Muscle achiness: often in the neck, back, arms, and legs.

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