Could I have had MS for years and not know it?

MS is usually diagnosed between the ages of 20 and 50, but it can go undetected for years. In fact, a 2021 study suggested that many people with MS experience disease symptoms several years before being officially diagnosed with the disease.

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Can you have MS for years without knowing?

MS varies from patient to patient so that each individual has their own set of symptoms, problems, and their own course. There are people who have MS so mildly that they never even know that they have it.

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Can you have mild MS and not know it?

A diagnosis of benign MS doesn't guarantee you'll be free of symptoms. You might still get things like fatigue or problems with your memory or thinking. MRI scans can still show MS is damaging your brain and spinal cord even if yours seems mild.

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How long can MS be dormant?

Cognition tests showed only mild impairment in three patients. Researchers said the study suggests that “it is not uncommon for people with relapsing MS “to have only mild or no physical or cognitive dysfunction approximately three decades after clinical onset.” MS may have a bimodal progression, the team said.

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When should you suspect multiple sclerosis?

People should consider the diagnosis of MS if they have one or more of these symptoms: vision loss in one or both eyes. acute paralysis in the legs or along one side of the body. acute numbness and tingling in a limb.

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Multiple Sclerosis - How I Knew I Had MS

24 related questions found

What are the usual first signs of MS?

Those symptoms include loss of vision in an eye, loss of power in an arm or leg or a rising sense of numbness in the legs. Other common symptoms associated with MS include spasms, fatigue, depression, incontinence issues, sexual dysfunction, and walking difficulties.

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What can be mistaken for multiple sclerosis?

Conditions That Can Seem Like MS
  • Epstein-Barr Virus.
  • Vitamin B12 Deficiency.
  • Diabetes.
  • Nerve Damage.
  • Eye Problems.
  • Stroke.
  • Lupus and Other Autoimmune Diseases.
  • Parkinson's Disease.

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How do you confirm you have MS?

Magnetic resonance imaging (MRI)

It's very accurate and can pinpoint the exact location and size of any inflammation, damage or scarring (lesions). MRI scans confirm a diagnosis in over 90 per cent of people with MS.

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What happens if MS goes undiagnosed?

Damage can happen without MS symptoms

MS symptoms appear as the disease damages your nerves. So you might assume that if you feel fine, no damage is happening. That's not true. Under the surface, the disease can continue to destroy the nerves in your brain and spinal cord, even if you don't experience a single symptom.

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Can MS go undiagnosed for 20 years?

Yes. MS can go undetected for years. Research has suggested that many patients experience MS-related symptoms and signs several years before receiving a definite diagnosis of the disease. MS symptoms can vary widely between patients, as well as over time, making the diagnosis difficult.

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Does MS show up in blood work?

While there is no definitive blood test for MS, blood tests can rule out other conditions that cause symptoms similar to those of MS, including lupus erythematosis, Sjogren's, vitamin and mineral deficiencies, some infections, and rare hereditary diseases.

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What age is Late onset MS?

MS is usually diagnosed between the ages of 20 and 49 years, though in rare cases MS is observed in childhood and adolescence before the age of 18 years, or at the age of 50 years and later (3). When the onset of the disease occurs at 50 years or older it is conventionally defined as late onset MS (LOMS).

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Can you have normal days with MS?

From day to day, those with multiple sclerosis (MS) will have their good days and then have some bad days. This type of fluxuation is common and it's always a bit random because you never really know what the next day is going to be like.

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Does an MRI always show MS?

MRI scans are an important way to help health care providers figure out if a person has MS or not, but MRI scans cannot diagnose MS by themselves. While it is true that almost all people with MS will have lesions on MRI, not all people with MRI lesions have MS.

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What other neurological disorders are similar to MS?

These include fibromyalgia and vitamin B12 deficiency, muscular dystrophy (MD), amyotrophic lateral sclerosis (ALS or Lou Gehrig's disease), migraine, hypo-thyroidism, hypertension, Beçhets, Arnold-Chiari deformity, and mitochondrial disorders, although your neurologist can usually rule them out quite easily.

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Where does MS usually start?

A lack of feeling or a pins-and-needles sensation can be the first sign of the nerve damage from MS. It usually happens in the face, arms, or legs, and on one side of the body.

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Can an eye test detect MS?

Diagnosis and early intervention

As optic neuritis is the presenting sign of MS in up to 30 percent of patients, the eye exam can lead to the initial systemic diagnosis.

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How do you test for early MS?

MS is best detected by a neurological examination and painless imaging studies of the brain and spinal cord using magnetic resonance testing (MRI). An ophthalmologist also can use a test called an optical coherence tomography (OCT) to determine if the optic nerve has been affected by MS.

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Can you still have MS with a clear MRI?

Although MRI is a very useful diagnostic tool, a normal MRI of the brain does not rule out the possibility of MS. About 5 percent of people who are confirmed to have MS do not initially have brain lesions evidenced by MRI.

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Can fibromyalgia be mistaken for MS?

But despite some similarities, “for the most part, there is no mistaking symptoms of MS with fibromyalgia,” says Philip Cohen, MD, a rheumatologist, professor of medicine and professor of microbiology and immunology at the Lewis Katz School of Medicine at Temple University in Philadelphia.

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What are the symptoms of late onset MS?

Late-onset MS causes a lot of changes in your motor skills too. You might notice: Bladder and bowel problems. Tremors.
...
Symptoms of Late-Onset MS
  • Fatigue.
  • Muscle weakness.
  • Changes in your vision.
  • Decline in cognitive ability (memory trouble, having a hard time focusing)

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What do early stages of MS look like?

Early signs and symptoms of MS

tingling and numbness. pains and spasms. weakness or fatigue. balance problems or dizziness.

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What does early MS pain feel like?

These pain sensations feel like burning, stabbing, sharp and squeezing sensations. In MS you can experience acute neuropathic pain and chronic neuropathic pain. Acute Neuropathic Pain is sometimes an initial symptom of MS or may be part of an MS relapse. Acute means it has a rapid onset and is of short duration.

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Do people with MS have symptoms everyday?

I have MS, that's multiple sclerosis to those of you whose lives haven't been touched by it. More specifically, and hey let's be specific, I have primary progressive multiple sclerosis. This means I have symptoms every day, and every night, without any intervals.

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Can you have mild MS all your life?

Multiple sclerosis (MS) is a condition that can affect the brain and spinal cord, causing a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation or balance. It's a lifelong condition that can sometimes cause serious disability, although it can occasionally be mild.

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